Research Opportunity for Mothers of Children with Spina Bifida
Research has shown that genetics play a role in Spina Bifida. The Spina Bifida Genetics Research Project is trying to identify genetic factors that are associated with an increased risk for Spina Bifida. Their hope is that this study results in a better understanding of Spina Bifida. And, they can use your help!
They are seeking mothers of children with Spina Bifida to enroll in a genetic study. Participants will be asked to complete a brief online survey and provide a saliva sample with a simple at-home kit. After your sample has been received, you will have your choice of a $10 Tim Hortons gift card or a $10 donation to your Local or National Spina Bifida & Hydrocephalus Association.
To find out more information and to enroll in the Spina Bifida Genetics Research Project, please go to the website at www.sbgenetics.org and select ENROLL. Click here for information about your privacy in this study. Your participation in this important study is sincerely appreciated! If you have any questions, please don't hesitate to contact 866-575-0110 or support@sbgenetics.org
Accessible Home for Sale
A 4 bedroom, 2 bathroom 1100 square foot accessible home is for sale in Ryley, Alberta. For more information, please visit the realtor's webpage at: http://www.trinahodges.com/listing_detail-3291881.html
Hydrocephalus and Spina Bifida Research Conference for Medical Professionals
There is a hydrocephalus and spina bifida conference for medical professionals put on by the Society for Research into Hydrocephalus & Spina Bifida. They're holding their 54th Annual Scientific Conference 2010 (SRHSB 2010) from July 7-10 in Vancouver. For more info, check the links below:
http://www.srhsb.org/
http://www.theconferencewebsite.com/conference-info/SRHSB-2010
Smart Phone Application - Accessible Parking
A smartphone application has been created for accessible parking. It serves three functions:
1.) Allows legal permit holders to find accessible parking spots close by.
2.) Allows anyone to report illegally parked vehicles in accessible spots.
3.) Allows users to add parking spots to the database (# of spots, wheelchair accessibility, cost, comments, etc.)
For more information, go here: http://tiny.cc/4bSVi
SCI Action Canada - Get In Motion - Free physical activity counseling service
Get in Motion (http://www.sciactioncanada.ca/get-in-motion.cfm) is a free physical activity counseling service for Canadians with spinal cord injury. This Canada-wide service is supported by the SCI Solutions Network in partnership with the Rick Hansen Foundation. Whether you are considering becoming physically active, have just begun a physical activity program, or have been engaging in physical activity for a while, you can benefit from this service, as physical activity counseling sessions are created to meet your specific needs. To participate or receive more information from an exercise counselor, please call our voicemail line at 1-866-678-1966 or click here: http://www.sciactioncanada.ca/contact.cfm
ACCD Disability Awareness Program
The Alberta Committee of Citizens with Disabilities has a program where they will go into the class room and present to students about disability with a goal to dispel myths and stereotypes about people with disabilities. The presentation includes: focusing on ability rather than disability, offering authentic view of people with disabilities and meeting someone with a disability, ability to ask questions about disability, demonstrating appropriate language and dismantling commonly held myths. For more information, please call the ACCD office at: 780-488-9088 or e-mail accd@accd.net
Songs of Love
The Songs of Love Foundation is an American Non-Profit organization dedicated to providing personalized songs for children and teens currently facing touch medical, physical or emotional challenges, free of charge. A member of the SBHANA brought this opportunity to my attention and said that the song which was made for her daughter was fabulous. Canadian applicants are welcome. For more information, visit their website: http://www.songsoflove.org/
New assisted waste collection program
This service is for Edmonton residents with temporary or permanent mobility challenges who do not have someone to take their waste to the curb or back lane for them. You can apply by filling in the application form and mailing or faxing it as directed on the form. Printable application forms can be found at www.edmonton.ca/waste. Applications can also be completed online at this website and submitted electronically. For questions or concerns, call 780-496-5698 or send an email to wasteman@edmonton.ca.
ETS Mobility Choice Travel Training Program
Are you interested in using public transit but concerned about mobility difficulties? Edmonton Transit System’s Mobility Choice Travel Training Program may be right for you! Edmonton Transit provides customized group and on-on-one training on how to use the transit service and features that meet your needs. This program is free of charge and can begin right at your doorstep. For more information, or to book trainings, phone: 780-496-3000 or e-mail ETSTravelTraining@edmonton.ca
Access 2 Entertainment Card—Application
http://access2.ca/english_default.html
This card provides free admission (or a significant discount) for support persons accompanying a person with a disability at member movie theatres across Canada. The person with the disability pays regular admission. This program was developed by an advisory group of nine national disability organizations, in conjunction with Cineplex Entertainment.
Persons with a permanent disability who require a support person when attending a movie theatre are eligible for the card. The applicant must agree to follow the terms and conditions for use of the card (see below).
A support person is an individual who accompanies a person with a disability to provide those services that are not provided by theatre employees, such as assisting the person with eating, administering medication, communication and use of the facilities. Click here for the Application.
Research Participants Needed:
Is your child using intermittent catheterization? You may be interested in a new study which had recently started in Edmonton and Calgary. Researchers Katherine Moore, PhD, Darcie Kiddoo, MD in Edmonton, and Bill Hyndman MD in Calgary are testing a new catheter for intermittent catheterization called Speedicath. They want to know if bladder infections are lower when the new product is used compared to the standard care of reused catheters. Participants will assess each catheter for 6 months and regular urine testing will occur. We are looking for children volunteers to take part in the project. If you would like to know more, please telephone Sally Martin, RN at 456-7518 or e-mail Sally at gjmart@telusplanet.net. This study is supported in part by the Spina Bifida and Hydrocephalus Associations of Northern and Southern Alberta, the Glenrose Rehabilitation Hospital, and the Northern Alberta Urology Foundation.
