Video Introduction

Spina bifida is the most common birth defect causing life-long disability in North America. Spina bifida is a condition in which the spina and spinal canal do not fully close before birth, resulting in permanent damage to the spinal cord. Many years ago, only 10% of babies with spina bifida survived their first year, but today with research and advances in medical technology, 90% survive and thrive! More than 80% of individuals with spina bifida also have hydrocephalus, an accumulation of fluid in the brain. Join us as we take a glimpse into the lives of six individuals affected by spina bifida and hydrocephalus.

More Stories

Nathan’s Story

Nathan is a joyful boy who is more severely affected by spina bifida and hydrocephalus than most. Rather than assuming that he can’t do something, Nathan’s family and friends think outside the box and brainstorm how he can.

Morgan’s Story

Morgan participates in almost every adapted sport and especially loves swimming and skiing. She is also actively involved in many clubs and activities in the community. Like a typical teenager, Morgan continually pushes for more independence and tries new things.

Ryan’s Story

Ryan lives independently in an accessible condo downtown near his workplace. Since graduating from MacEwan University, Ryan continues to work hard, and has succeeded in the workplace. He enjoys travelling, watching sports, and spending time with family.