We're Advocating for You

The Spina Bifida and Hydrocephalus Association of Northern Alberta (SBHANA) is committed to robust advocacy efforts, tirelessly working to enhance the lives of individuals and families affected by spina bifida and hydrocephalus. Here are key aspects of the advocacy work undertaken by SBHANA. Here’s how we are making a difference through our advocacy efforts:

Policy Influence

SBHANA actively engages with policymakers, governmental bodies, and healthcare institutions to advocate for policies that address the unique needs of individuals with spina bifida and/or hydrocephalus. We work towards creating a more inclusive and supportive environment on both local and regional levels.

Community Awareness

Advocacy begins with awareness. We spearhead public awareness campaigns to shed light on the challenges faced by our community, dispel misconceptions, and promote a better understanding of spina bifida and hydrocephalus. By amplifying the voices of those affected, we strive to create empathy and foster a more informed society.

Educational Initiatives

Knowledge is a powerful tool for change. SBHANA conducts educational workshops and seminars to inform not only our community members but also the broader public about spina bifida and hydrocephalus. Through these initiatives, we aim to break down barriers, challenge stereotypes, and encourage inclusivity.

Collaboration with Healthcare Professionals

SBHANA collaborates with healthcare professionals, specialists, and medical institutions to ensure that the unique medical needs of individuals with spina bifida and hydrocephalus are recognized and addressed appropriately. The organization actively participates in healthcare forums and discussions to advocate for improved medical care and support services.

Raising Public Awareness

SBHANA actively engages in public awareness campaigns through various media channels, social platforms, and community events. The organization works to highlight the achievements, strengths, and aspirations of individuals with spina bifida and hydrocephalus, challenging stereotypes and promoting inclusivity.

Collaboration with Stakeholders

We believe in the strength of collaboration. SBHANA collaborates with healthcare professionals, educators, and other advocacy groups to create a comprehensive network of support. By working together, we amplify our impact and address the multifaceted aspects of living with spina bifida and hydrocephalus.

Legislative Initiatives

SBHANA actively participates in legislative initiatives that aim to improve the quality of life for individuals with spina bifida and hydrocephalus. Our advocacy work encompasses issues related to healthcare access, educational resources, and the overall well-being of our community.

Empowering Individuals

Advocacy at SBHANA is not just about policy changes; it’s about empowering individuals. We provide tools, resources, and a platform for our community members to advocate for themselves, ensuring that their voices are heard and respected.

Through these advocacy efforts, SBHANA continues to be a vocal and influential force, striving to create a more supportive, understanding, and inclusive environment for individuals and families affected by spina bifida and hydrocephalus in Northern Alberta. Together, we can be a powerful force for positive change.