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About Us


In 1972, a parent group was formed to support one another in the journey of raising a child affected by spina bifida and/or hydrocephalus. Monthly support meetings were held once a month, in association with the spina bifida clinic at the Glenrose Hospital, from December 1975 until May 1981. On June 25, 1981, the Northern Alberta Spina Bifida Association was officially incorporated. The association’s name has changed over the years and, in 1999, became the Spina Bifida and Hydrocephalus Association of Northern Alberta (SBHANA). Now, the SBHANA continues to be a thriving and successful organization providing support to individuals affected by spina bifida and hydrocephalus.


To improve the quality of life for people affected by spina bifida and hydrocephalus through advocacy, education, and support.


People and the community affected by spina bifida and hydrocephalus are engaged, informed, and empowered through a vibrant network facilitated by our leading and innovative organization.

The Daisy

The SBHANA’s symbol is the daisy, which represents the challenges of spina bifida and hydrocephalus:


Annual Reports

Annual General Meeting Report 2022

Annual Report SBHANA 2019

2017-2018 Annual Report (PDF)

2016-2017 Annual Report (PDF)

2015-2016 Annual Report (PDF)

2014-2015 Annual Report (PDF)

2013-2014 Annual Report (PDF)

2012-2013 Annual Report (PDF)