Resources

These resources have been curated by SBHANA for those impacted by Spina Bifida and Hydrocephalus. These resources highlight the many opportunities for community and support available to you. If you would like more information or specific recommendations, please contact us at

Advocacy

Advocacy Letter Writing

Website

Apps

MediSafe

Website

The fastest, most secure and accurate way to track all of your meds and measurements.

Education

Human Rights Commission Alberta

Website

Here you find information on your human rights. Whether you are having issues at work, with housing or accessing services, this website contains information about your rights and legal responsibilities

Books

We’ve Got This: Essays by Disabled Parents

Website

In We’ve Got This, parents around the world who identify as Deaf, disabled, or chronically ill discuss the highs and lows of their parenting journeys and reveal that the greatest obstacles lie in other people’s attitudes. The result is a moving, revelatory, and empowering anthology that tackles ableism head-on. As Rebekah Taussig writes, ‘Parenthood can tangle with grief and loss. Disability can include joy and abundance. And goddammit — disabled parents exist.’

Books

Maternity Rolls: Pregnancy, Childbirth and Disability

Website

This book tells the story of Heather Kuttai’s life, her pregnancies and giving birth to illustrate both her self-awareness and her awareness of our society’s negative perceptions of disability.