In 1972, a parent group was formed to support one another in the journey of raising a child affected by spina bifida and/or hydrocephalus. Monthly support meetings were held once a month, in association with the spina bifida clinic at the Glenrose Hospital, from December 1975 until May 1981. On June 25, 1981, the Northern Alberta Spina Bifida Association was officially incorporated. The association’s name has changed over the years and, in 1999, became the Spina Bifida and Hydrocephalus Association of Northern Alberta (SBHANA). Now, the SBHANA continues to be a thriving and successful organization providing support to individuals affected by spina bifida and hydrocephalus.
To improve the quality of life for people affected by spina bifida and hydrocephalus through advocacy, education, research, and support.
People with spina bifida and hydrocephalus are engaged, informed, and empowered through a vibrant network facilitated by our leading and innovative organization.
The SBHANA’s symbol is the daisy, which represents the challenges of spina bifida and hydrocephalus:
- The heart of the flower represents the brain, which in the case of persons living with spina bifida, is often affected by hydrocephalus
- The daisy’s petals are cloven, thereby representing the various lesions caused by spina bifida and hydrocephalus
- The daisy’s leaf and stem are irregular and depict the unusual form of the spinal cord and backbone of a person born with spina bifida
- The beauty of the flower reflects the beauty of people with spina bifida and hydrocephalus who, in spite of their challenges, live happy and productive lives.