Advocacy. Education. Support.

What is
Spina Bifida?

What is
Hydrocephalus?

For expectant
parents.

Advocating for our Community

The Spina Bifida and Hydrocephalus Association of Northern Alberta (SBHANA) is committed to robust advocacy efforts, tirelessly working to enhance the lives of individuals and families affected by spina bifida and hydrocephalus.

Get Involved

Whether you are seeking support, information, or ways to contribute, SBHANA welcomes individuals, families, and supporters to join our community. By actively participating in our events, programs, and advocacy initiatives, you become a crucial part of our mission to create a more inclusive and understanding society for those affected by spina bifida and hydrocephalus.

Join us at SBHANA as we strive to make a positive impact on the lives of our community members and work towards a more inclusive and supportive future.

SBHANA Community Programs

NoLimits Peer
Support Evenings

SBHANA
Support Fund

Camp
Freedom

SBHANA
Scholarship

Camp Freedom 25th Reunion

Thank you to all who came to the Camp Freedom 25th Anniversary Reunion! Check out photos from the event below.

Stephanie Park SBHANA Member Spotlight

Stephanie Park was born and raised in Maple Ridge, BC.  She originally went to university in Vancouver to pursue an education degree, but she realized that path was not for her and switched to Child and Youth Care in hopes of becoming a Child Life Specialist.  In April 2021, she joined the Stollery Children’s Hospital as a Child Life Specialist while also enrolling in Yorkville University’s Master of Arts in Counselling Psychology program.

 

Stephanie met her husband shortly after moving here and has made this city her home. At the Stollery, Stephanie works in the emergency department, helping children navigate and understand their hospital experiences. Recently, she has expanded her practice into the private sector, where she supports children dealing with medical trauma and medical anxiety.

 

Though she has only attended a few events with the Spina Bifida and Hydrocephalus Association of Northern Alberta, Stephanie is excited about the many activities and events offered. She looks forward to meeting others in the community and is eager to get more involved, including offering her support through volunteering.

By Chris Brainerd

Try it Days

Want to try a new activity? Join us on our try-it days!