Advocacy. Education. Support.

What is
Spina Bifida?

What is

For expectant

Advocating for our Community

The Spina Bifida and Hydrocephalus Association of Northern Alberta (SBHANA) is committed to robust advocacy efforts, tirelessly working to enhance the lives of individuals and families affected by spina bifida and hydrocephalus.


This year the Christmas Party will be held on Saturday, November 30th, 2024, at Kensington Community Hall from 5:00 pm to 9:00 pm. Dinner will be served at 5:30 pm. The Hall is located at 12130-134 A Avenue. All SBHANA members and their families are invited to enjoy a delicious Christmas dinner, a visit from Santa, Christmas crafts and activities, face painting, door prizes and socializing followed by a dance!

Get Involved

Whether you are seeking support, information, or ways to contribute, SBHANA welcomes individuals, families, and supporters to join our community. By actively participating in our events, programs, and advocacy initiatives, you become a crucial part of our mission to create a more inclusive and understanding society for those affected by spina bifida and hydrocephalus.

Join us at SBHANA as we strive to make a positive impact on the lives of our community members and work towards a more inclusive and supportive future.

SBHANA Community Programs

NoLimits Peer
Support Evenings

Support Fund



Mackenzie Doll SBHANA Member Spotlight

Mackenzie Doll has been a member of the SBHANA her whole life, with her parents joining shortly after she was born. As a child, she attended association events, such as the Christmas Party and family barbeques at Rundle Park in Edmonton. She attended Camp Freedom most of her teen years, developing lifelong friendships with both campers and counsellors, and she volunteered as a counsellor herself in 2019.

Mackenzie has been involved in athletic endeavors most of her life. She played wheelchair basketball with the Alberta Northern Lights as a child and now competes as a para powerlifter. Wanting to stay involved in wheelchair basketball with her siblings still playing, she is also on the board of directors for the Alberta Northern Lights Wheelchair Basketball Society.

Having a desire to be a part of something larger and helping others with spina bifida, she joined the SBHANA board of directors in 2022. Mackenzie will be the liaison between the new Members Advisory Committee and the board of directors.

By Chris Brainerd